Accepting but then Letting Go of Fear

Last week, I received the results from my latest CT scan. As I mentioned in my previous post, this scan, which was originally scheduled for September, was brought forward after a rise in my … Read the rest

New Campaign to Raise Awareness of Bile Duct Cancer

Today, it has come to my attention that there is a petition to raise awareness of Cholangiocarcinoma. Currently, the UK government has said there are no plans to run such a campaign.

Why on … Read the rest

Unexpected Fear

greyscale photography of woman wearing long sleeved top
Photo by Kat Jayne on Pexels.com

Recently, I’ve had a pretty good run of it all. Great response to my new treatment, Pemigatinib, resulting in really encouraging scan results showing shrinkage on all tumours, with some in my lungs, going … Read the rest

Cancerversary – 1 Year Living with Cholangiocarcinoma

Photo by Stephanie McCabe on Unsplash

Today is as significant to me as so many other important dates each year.

Today marks 1 year since I was diagnosed with stage 3 bile duct cancer, also called Cholangiocarcinoma.

The start of … Read the rest

New Hope For Us Living with Cholangiocarcinoma

Wow, what a week it has been. I knew that cancer would be pretty life-changing, and it has been, but none more so than the last 5 days.

You may well have already heard … Read the rest

Cancer and Pain

Photo by Zygimantas Dukauskas on Unsplash

Pain with a cancer diagnosis is just expected and accepted. After death itself, the pain was the main fear I felt after my diagnosis. Due to the pain, I was experiencing at the time … Read the rest

Meditation – The Strength I Found From Being Calm

Photo by Dingzeyu Li on Unsplash

There have been many changes I put in place in order to give myself the best chance of improving my health and overcoming the dire prognosis given when diagnosed with cholangiocarcinoma, the majority of … Read the rest

Pemigatinib – the wonder drug?

Photo by Myriam Zilles on Unsplash

For me, right now, absolutely!

On the 29th of April, after a couple of terrible months, I finally began a targeted therapy called Pemigatinib (Pemazyre). I became eligible for this treatment after testing positive … Read the rest

Finding My Life

This simple statement I recently read, really resonated with me.

The truth is, I HAVE lost the life I had.

Cancer changes you. Facing your own mortality changes you and life can never be the same as it was before.… Read the rest

Mental Health and Cancer

As you may know, this week has been Mental Health Awareness Week and I wanted to share with you how cancer has affected my mental health from diagnosis to now, just 9 months on, as well as some simple coping … Read the rest