Accepting but then Letting Go of Fear

Last week, I received the results from my latest CT scan. As I mentioned in my previous post, this scan, which was originally scheduled for September, was brought forward after a rise in my … Read the rest

New Campaign to Raise Awareness of Bile Duct Cancer

Today, it has come to my attention that there is a petition to raise awareness of Cholangiocarcinoma. Currently, the UK government has said there are no plans to run such a campaign.

Why on … Read the rest

Unexpected Fear

greyscale photography of woman wearing long sleeved top
Photo by Kat Jayne on Pexels.com

Recently, I’ve had a pretty good run of it all. Great response to my new treatment, Pemigatinib, resulting in really encouraging scan results showing shrinkage on all tumours, with some in my lungs, going … Read the rest

Cancerversary – 1 Year Living with Cholangiocarcinoma

Photo by Stephanie McCabe on Unsplash

Today is as significant to me as so many other important dates each year.

Today marks 1 year since I was diagnosed with stage 3 bile duct cancer, also called Cholangiocarcinoma.

The start of … Read the rest

New Hope For Us Living with Cholangiocarcinoma

Wow, what a week it has been. I knew that cancer would be pretty life-changing, and it has been, but none more so than the last 5 days.

You may well have already heard … Read the rest

Cancer and Pain

Photo by Zygimantas Dukauskas on Unsplash

Pain with a cancer diagnosis is just expected and accepted. After death itself, the pain was the main fear I felt after my diagnosis. Due to the pain, I was experiencing at the time … Read the rest

Meditation – The Strength I Found From Being Calm

Photo by Dingzeyu Li on Unsplash

There have been many changes I put in place in order to give myself the best chance of improving my health and overcoming the dire prognosis given when diagnosed with cholangiocarcinoma, the majority of … Read the rest

Pemigatinib – the wonder drug?

Photo by Myriam Zilles on Unsplash

For me, right now, absolutely!

On the 29th of April, after a couple of terrible months, I finally began a targeted therapy called Pemigatinib (Pemazyre). I became eligible for this treatment after testing positive … Read the rest

Food Win

Had a go at one of those trendy “buddha bowls” everyone’s been showing off on social media (including me now)…proper nice!

Eating when you have cancer can be tricky. My own appetite, whether through the illness itself, treatment or stress, … Read the rest

Food As Medicine

Have you ever looked into the role food plays when living with cancer?

Early on in my cancer journey, I struggled with eating. Of course, cancer will play havoc with your appetite but for me in these first weeks after … Read the rest