Almost 2 weeks ago, I posted about how difficult I had found the previous couple of months. No matter how positive and determined I tried to be in my resolve to tackle this cancer, even my strong spirit came close to breaking.
Right now, it’s hard for me to believe that this was so recent. On 29th April, I finally began a new treatment, a targeted therapy called Pemigatinib, and the effect on me and the debilitating symptoms that had consumed me no matter how I tried to rise above it all, was almost immediate.
But, although I am truly grateful to finally be feeling more myself again,that isn’t the reason for this post…..that’s just an update and I will post soon about this treatment and how i’m finding it as time goes on.
As I have mentioned before, I decided early on in this “fight” that I didn’t just want to rely on standard treatment and spent a lot of time researching the benefits of nutrition, exercise, supplements, stress reduction, repurposed drugs as well as alternative therapies found to be beneficial to cancer patients, such as IV-C infusions, oxygen therapy and hyperthermia treatments.
Although the nutrition, exercise and stress reduction methods such as meditation were relatively easy to implement into life, the many supplements recommended, repurposed drugs and alternative therapies are expensive and unfortunately, the bills still need paying, so these were just not an option for me. I made the decision to focus solely on the nutrition, exercise, supplements and meditation.
And this was fine to start with. I was lucky to tolerate the chemotherapy well with minimum side effects and showing a good response to treatment with scans showing shrinkage in the tumours and because of that I was able to eat well and get out for my much loved walks.
A lot of my friends and family were aware of my wish to tackle cancer from all angles and soon after my diagnosis, a very dear friend, Emma, suggested setting up a Go Fund Me page in order to get me access to these alternative therapies. I had been mortified at the time, embarrassed that I would need to rely on the generosity of other people for this to be an option and so refused whenever the subject was broached.
However, when my treatment ended and my health began to decline rapidly, the fear crept in and when my friend asked me to consider this again, I agreed for her to set one up.
I don’t know what I did expect but it certainly wasn’t what occurred and in a very short space of time. People began to donate and share my story so quickly, we were both left completely gobsmacked. The “target” set was reached within 24 hours and has since surpassed this. I can’t tell you how much it means to me that thanks to peoples kindness, love and generosity, I am able to access these additional treatments and give me the best chance of controlling the cancer and buying as much time as possible to spend with my children, friends and family.
But, what has completely blown me away has been the messages of support from people, even complete strangers. I have spent much of the time since, a blubbering and emotional wreck as messages continued to pour in offering support, encouragement and love. It’s given me the opportunity to connect with old school friends, family members and new people, all wanting to help and it has been completely overwhelming.
It’s been a tough year for everyone, many losing loved ones or unable to visit sick family members due to Covid restrictions. Many have lost their jobs and businesses have either folded or have left owners in considerable debt.
And yet……STILL people want to help.
And HAVE helped.
“Do your little bit of good where you are; it’s those little bits of good put together that overwhelm the world” – Desmond Tutu
After a period of extreme pain, fear and vulnerbility, this support has reignited the fire in my belly and resolve to invest everything I have into my healing and to live each day.
I cannot convey just how truly grateful for the compassion and kindness shown towards me, not only recently but from the start of this chapter in my life.
I hope you or your loved one has support and love around them.
I am always here for anyone struggling, needing or wanting someone to talk to.
Much love and strength,