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Welcome to Beating Bile Duct Cancer.

On August 4th, 2020, I was diagnosed with Stage 3 (now stage 4), inoperable, intrahepatic, Bile Duct Cancer, also known as Cholangiocarcinoma. I was also informed that the focus would be on “quality of life”. My life, as I knew it, fell apart right then. Maybe the doctor didn’t want to overload me that afternoon but I was told nothing about this rare cancer and simply sent home with an information leaflet.

Naturally, I wanted, well, needed, to know as much as possible about bile duct cancer and spent hours searching the internet for anything and everything. It all made for rather dismal reading and left me feeling fearful for my future. From what I read, I’d be lucky to make 6 months. This just didn’t work for me.

So…..

I decided to focus on how the cancer was affecting ME, not the statistics I was reading

What I really longed for, was to connect with other people who were also going through this or those who had survived their diagnosis. A place where I could read about their experiences or talk to them and hear about their journeys. Unfortunately, there was very little, if anything.

And so, this website was born.

That was now 13 months ago, and what a journey it has been so far. I have learned so much about bile duct cancer, cancer in general, how nutrition and supplements can help support your health, maximise your treatment, and even target and kill cancer cells. I have been able to connect to many wonderful and inspiring people around the world who are either living with this diagnosis or caring for a loved one. I have looked into the power of the mind and stress reduction, both so important when living with cancer. I’ve been able to access alternative therapies and have had additional support with other specialists. I have even been lucky enough to tell my story in the media, which has connected me to some amazing organisations out there, helping all of us living with bile duct cancer.

It’s really important to me that this website gives you some hope when living with bile duct cancer. There are so many ups and downs but you will find a new “normal”. Right now, 13 months on, I am feeling really well. I have never taken so much care of myself….and I am absolutely loving it!

I eat healthy, exercise, meditate, found a real interest and love of natural skin care products, and have even learned to finally know my self-worth.

If you or a loved one have been diagnosed with Cholangiocarcinoma, please please know that there really IS hope.

I would love to hear from you:

  • Have you been diagnosed with bile duct cancer?
  • What support do you have?
  • How have you started treatment yet?
  • Have you struggled with pain or other symptoms that are impacting your day to day life?
  • Have you tried alternative therapies?
  • Are there any coping strategies that you have found helpful?
  • Have you survived bile duct cancer and got some advice for those currently living with bile duct cancer?

Anything at all!

Much love and strength,

Megan x

9 thoughts on “Home”

    1. I am but thank you for mentioning them. I find their website and social media accounts so useful. I added a link on the “Useful Links” page so others can access the information and support.

      1. Greetings from York Pa. USA. I was diagnosed with bile cancer on Oct 18, 2021. After reading about it I became quite concerned and fearful. I am 78 and am blessed to have lived this long with other conditions. I read about you and pray for you daily and admire your stamina. I have just visited the Radioligist today and will have Y90 targeted radiology. They are putting me in touch with a medical oncologist. I had a chestCat Scan and biopsy showing stage 2. I am scheduled for another Cat Scan of my liver and they will do mapping to see where they will target the cancer. I am following your condition and am awed at your patience and drive. Blessings to you.

      2. Hi Harriet,

        Greetings from across the pond! I am so sorry to hear you have been diagnosed with this cancer. I do hope you have a good support team around you to help you come to terms with this. On a positive note, it is great to hear they have at least found this at stage 2 and your oncologist seems to be on the ball with treatment options. I have heard good things about Y90, so I really hope it is successful for you. I have had a pretty rough time of it these last couple of months but am feeling slightly more myself and positive again.
        Always here.
        Warmest wishes,
        Megan

  1. Greetings from Los Angeles. I am a colon cancer survivor (stage 3b), ulcerative colitis/PSC two time liver transplant recipient, and stage 1 bile duct cancer survivor. I saw a story today on your drug treatment and wanted to send you love and encouragement from far away. I know what you are going through, and I know that feeling of destiny, inevitably, powerlessness, that somehow mixes with appreciation and the beauty of each moment.

    I hope your destiny is an extended life, surrounded by love. Somehow I made it to the other side of illness. I want you to feel this place like I do right now, as I type this.

    Be strong, be well, be hopeful, and heal.

    Peter Cullen.

    1. Hi Peter,

      Thank you so much for getting in touch and sharing a snippet of your inspiring story. You really have been through a lot, but as you put it so beautifully, it’s through such difficult times that you learn to see the beauty in each moment. I’m so pleased to hear that you have healed and I hope you are living your best life.
      The place you mention is my goal and I’m doing all that I can to get there.

      Warmest wishes to you,

      Megan

  2. Hi Megan,

    I found out this week my dad has stage 4 bile duct cancer and although it was suspected before biopsy he had complications with previous biopsy that came out inconclusive and suffered internal bleeding from one which made him loose a lot of weight. My heart completely shattered when the doctored said stage 4 and all the worst thoughts came rushing to me. Doesnt help i m a cry baby. My dad comforted me because he always try to stay strong for us. But coming across your instagram gave me a glimmer of hope. He hopefully will decide yo go ahead with chemo treatment. We already been on super healthy diet for almost a month and things recommended by nutritionist as it was only thing would could do as we didnt have the results. Do you have any other tips ?

    Kind regards,
    Virginia

    1. Hi Virginia,

      I am so sorry to hear of your dad’s diagnosis. I can imagine how scared you all are right now, and it takes time to navigate all the feelings, but you will settle into a new “normal”. You are already being really proactive in helping him and absolutely brilliant you have a nutritionist on board to support you with this. Keeping his body full of good nutrition will help him in so many ways, and will also help him cope with the chemotherapy better. I’m so glad that my account gave you some hope. There are many others living with this…..and well! Forget the “4”, once you let the fear overwhelm you, it can have a devasting effect. There IS hope, I promise. I have had a dreadful couple of months and let myself lose hope, but now, thanks to the support of loved ones, we have a plan put together and I’m all set to go with it. You will find there are so many ebbs and flows in this, but just keep focused on healing your dad. If you need any advice or just to vent, pop me an email.

      Please pass on my regards to your dad.

      Warmest wishes,

      Megan

      1. Thank you Megan, hope you keep staying so strong and shining you light to loved ones and people like me who need a glimmer of hope!

        I will drop you a email if i need any advise if you don’t mind.

        Thank you again!

        Best wishes,

        Virginia

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